 |
updated:
6
March 2007
Other
publications
The
following section is intended to list information about publications
in palliative care that might be of interest to those working
in palliative care or related disciplines. It is not a comprehensive
listing and the inclusion of a publication does not necessarily
signify EAPC approval of its quality. While
every effort is made to ensure the accuracy and validity of
all entries, the EAPC does not accept responsibility for any
inaccuracies or omissions
USA
Getting Started: Guidelines and suggestions for those considering
starting a Hospice / Palliative Care Service
Contributors
Dr Derek Doyle (Editor) Founding Member and Adviser of the IAHPC
(UK)
Dr. K S Chan (Hong Kong, China)
Dr Daniela Mosoiu (Romania)
Dr Alan Nixon (Canada and Saudi Arabia)
http://www.hospicecare.com/gs/
Publications
national associations
FRANCE
Putting
the plans for french palliative care into action.
Marilene Filbet, EAPC Board member EJPC101Filbet(E).pdf
Mise
en pratique des programmes de soins palliatifs en France
Marilene Filbet, membre du conseil d'administration EAPC EJPC101Filbet(f).pdf
SOINS
PALLIATIFS : spécificité d’utilisation
des médicaments courants
hors antalgiques. RECOMMANDATIONS
(Recommendations
for the use of drugs in palliative care for symptoms other
than pain)
The
French agency for security of medical and sanitary products
had established an expert group to prepare recommendations
for a list of drugs used for the control of symptoms in Palliative
Care other than Pain. The group has based their work on the
current literature following the level of evidence (A to C)
This "guide for the use of drugs in palliative care”
is used to spread knowledge about symptom control to non palliative
care specialists. They have been diffused in all health care
services in France.
Marilene Filbet, EAPC Board member click
here to download
Only
French version
Recommendations sur la spécificité
d’utilisation des médicaments courants hors antalgiques
Les
recommandations de l’agence Française de sécurité
sanitaire des produits de santé ont été
établies par un groupe d’expert qui a travaillé
sur les données de la littérature suivant les
niveaux d’évidence habituels (niveau A étude
avec tirage au sort à C consensus d’expert)
Ce travail a été diffusé dans tous les
établissement de santé servira de référence
dans l’utilisation des médicaments usuels des
soins palliatifs et permettra de cette façon de divulguer
les connaissances en soins palliatifs en dehors des services
spécialisés.
Marilene Filbet, membre du conseil d'administration EAPC télécharger
Only
French version
SWITZERLAND
Euthanasia: a survey and a position paper of
the Swiss Association for Palliative Care
Since
the Swiss Association for Palliative Care (SAPC) considers
itself as an important partner in the national debate on euthanasia,
the Board decided to conduct a survey among its members. An
anonymous questionnaire was sent to the members, consisting
of multiple choice questions on positions that might be adopted
in different hypothetical scenarios and one open question
about the rationale for the answers. The response rate achieved
with one mailing was 56%. The proportion of the respondents
who were opposed to different forms of euthanasia were from
56% opposed to physician-assisted suicide to 84% to 90% to
life-terminating acts without explicit requests (LAWER).
The
main decisional bases drawn on for the answers were ethical
values and the clinical or personal experience of the respondents.
The most interesting findings concerned the qualitative analysis
of the responses to the last open question on the rationale
for the answers and its matching to the answers concerning
the attitudes towards euthanasia illustrating the complexity
of the topic (1). Based on this survey and a discussion among
the members of the Board of the SAPC, a position paper with
the following core sentences has been published in the journal
of the national medical association (2):
Clinical
and scientific experiences show that requests for PAS and
DAE arise in the context of physical and psychosocial suffering,
and are in an adequate treatment setting generally transient.
Palliative care has made considerable progress in the clinical
care of patients with sever and advanced diseases, a fact
that has led to an important development of palliative care
in certain countries. A national survey on the offer of palliative
care has shown, that the offer of palliative care is insufficient,
that there are considerable regional differences and that
palliative care is still focused on patients with cancer.
The SAPC considers it therefore inconsequent to gesetzlich
verankern PAS and DAE in Switzerland before every severely
ill patient in need has access to quality controlled palliative
care. Furthermore, the SAPC wishes the offer of palliative
care to develop and the public discussion on end of life care
to continue.
- Bittel
N, Neuenschwander H, Stiefel F: „Euthanasia":
a survey by the Swiss Association for Palliative Care. Support
Care Cancer, online publication No 00520-001-0325
- Stiefel
F, neuenschwander H: Euthanasie — Der Standpunkt der
Schweizerischen Gesellschaft für Palliative Medizin,
Pflege und Begleitung (SGPMP). Schweizerische Aerztezeitung
2001; 82: 1609-1610
Prof.
F. Stiefel
President of the Swiss Associaton for Palliative Care
A
review of the volunteer movement in EAPC countries –
Federazione Cure Palliative, Italy
version
française
During
the 7th Congress of the European Association for Palliative
Care (EAPC) in Palermo, Claude Fusco-Karmann, Kyriaki Mistakidou,
Furio Zucco, Rosalba Canova and Katalin Heghedus presented
the results from a recent survey on volunteer movement in
EAPC member countries to assess the importance of their contribution
to palliative care and to establish a Europe-wide network
of volunteer organisations.
A total of 16 countries – representing 715 palliative
care associations and 29,000 volunteers – participated
in the survey with some surprising results.
An article entitled ‘A review of volunteer movement in
EAPC countries’ has been published in the September/October
issue of the European Journal of Palliative Care where
all the results are detailed.
click
here to download
For further information or to contact participants, please
visit the website of the Federazione Cure Palliative (http://www.fedcp.org).
An English version of the site is currently under construction.
Acknowledgements
We would like to thank the Federazione Cure Palliative ONLUS
and Lega Italiana per la Lotta contro i Tumori (LICT) based
in Milan for supporting the study and for collecting and processing
the data; the EAPC and the Scientific Committee of the 7th
Congress for their support and co-operation on the project,
software engineers Fabio Carminati and Samuele Caruso, volunteers
at LICT, for creating the software and processing the data.
The work was made possible by the generous collaboration and
the commitment of all of the European colleagues who took
responsibility for the following areas: Maurice Chausson –
Belgium, France, Luxembourg, the Netherlands; Kyriaki Mistakidou
– Croatia, Cyprus, Greece, Hungary, Rumania; the colleagues
who collected data in the individual countries – Micri
Adriaensen, Anne Françoise Nollet and Betty Servais
(Belgium), Anita Jusic (Croatia), Anna Achilleoudi (Cyprus),
Rainer Sabatowski (Germany), Katalin Hegedus (Hungary), Regina
McQuillan (Ireland), Ilene Cibulski (Israel), Hans Bart (the
Netherlands), Costantin Bogdan (Rumania), Anna Novellas Aguirre
de Carcer (Spain), Lars Nurbo (Sweden), Rosalba Canova (Switzerland).
Claude Fusco-Karmann, Gianna Tinini
Etude du mouvement des bénévoles
dans les pays de l'EAPC – Federazione Cure Palliative,
Italy
A
l’occasion du 7ème Congrès de l’Association
Européenne de Soins Palliatifs qui a eu lieu à
Palerme en Avril dernier, Claude Fusco-Karmann, Kyriaki Mistakidou,
Furio Zucco, Rosalba Canova et Katalin Heghedus ont présenté
les résultats d’une enquête visant à
établir d’une part l’importance du mouvement
de bénévolat en soins palliatifs dans les pays
de l’AESP et d’autre part à créer
un réseau de communication entre les associations et
au service du public.
Seize pays représentant 715 associations et 29 000
bénévoles ont participé à l’enquête
dont les résultats sont assez surprenants.
Un article reportant en détail ces résultats,
intitulé: 'Etude du mouvement de bénévolat
dans les pays de l’EAPC' a été publié
dans le numéro septembre/octobre du Journal Européen
de Soins Palliatifs.
télécharger
Pour toute information ou pour contacter les participants,
nous vous suggérons de visiter le site de la Federazione
Cure Palliative Onlus (http://www.fedcp.org).
Une version en langue anglaise est en phase d’élaboration.
Remerciements
Nous désirons remercier la Federazione Cure Palliative
Onlus et la Lega Italiana per la Lotta contro i Tumori (LICT)
de Milan qui ont donné leur appui à l’organisation
et à l’élaboration des données de
l’enquête; l’AESP et le Comité Scientifique
du 7ème Congrès pour leur support et leur coopération;
les ingénieurs informatiques Fabio Carminati et Samuele
Caruso, bénévoles de la LICT qui ont élaboré
le software et les données.
Ce travail a pu être réalisé grâce
à la collaboration généreuse et à
la participation enthousiaste des collègues Européens
qui se sont assumé la responsabilité des groupes
de pays suivants: Maurice Chausson – Belgique, France,
Luxembourg, Pays Bas; Kyriaki Mistakidou – Chypre, Croatie,
Grèce, Hongrie, Roumanie; des collègues qui
ont recueilli les informations dans les différents
pays – Rainer Sabatowski (Allemagne), Micri Adriaensen,
Anne Françoise Nollet et Betty Servais (Belgique),
Anna Achilleoudi (Chypre), Anita Jusic (Croatie), Anna Novellas
Aguirre de Carcer (Espagne), Katalin Hegedus (Hongrie), Regina
McQuillan (Irlande), Ilene Cibulski (Israel), Hans Bart (Pays
Bas), Costantin Bogdan (Roumanie), Lars Nurbo (Suède),
Rosalba Canova (Suisse).
Claude Fusco-Karmann, Gianna Tinini
Spain
The
Spanish Society for Palliative Care's (SECPAL) Basic Recommendations
for Training in Palliative Care (download
in Word 6) For information about the association,
please visit their website http://www.secpal.com/
|
