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updated: 15
February 2008
Books:
The
following section is intended to list information about publications
in palliative care that might be of interest to both patients
and carer’s . It is not a comprehensive listing and
the inclusion of a publication does not necessarily signify
EAPC approval of its quality.
While
every effort is made to ensure the accuracy and validity of
all entries, the EAPC does not accept responsibility for any
inaccuracies or omissions.
| "Cancer
Tales: Communicating in cancer care" is an educational workbook aimed at healthcare professionals
working in the field of oncology. It aims to provide advice,
guidance and practical exercises designed to create an understanding
of the impact of communication and to improve the interaction
between healthcare professionals and their patients. It is
based around the highly emotive play Cancer Tales, by Nell
Dunn, which tells real life stories of patients with cancer
and their families. To view the workbook and for more information
please visit http://www.cancertales.org/ |
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Negotiating death in contemporary health and social care
Margaret Holloway
This book brings together perspectives from social science, health-care and pastoral theology, looking at the way death is handled in contemporary society and the sensitive ethical and practical dilemmas facing nurses, social workers, doctors and chaplains.
Contents: Death in late modernity; Contemporary health and social care; Understanding death and dying; Understanding bereavement and grief; The ways in which people die; Dying in the twenty-first century; Dying and bereavement in old age; The aftermath of death; Integrating theories and practices |
L’ultimo viaggio
Consigli per chi accompagna alla fine della vita
Nicoletta Ghilotti
Dalla Prefazione:
È benvenuto qualunque contributo, come quello contenuto nelle pagine di questo breve libro, che possa aiutare la famiglia di un malato che si avvia verso la fine della vita a partecipare nel modo più appropriato alle cure domiciliari del proprio caro, soprattutto se questo contributo viene fornito da una infermiera che ha acquisito competenze specifiche in questo campo attraverso il proprio lavoro svolto con grande passione in questi anni.
Carlo Peruselli
Direttore SC Cure Palliative ASL Biella
Sommario del volume: Un cammino personale e professionale • I bisogni del malato • I bisogni della famiglia • Bisogno di assenza di dolore • Bisogno di sentirsi pulito e in ordine • Bisogno di alimentarsi • Bisogno di eliminare • Bisogno di muoversi e mantenere la posizione • Bisogno di respirare • Bisogno di riposare e dormire • Bisogno di terapie adeguate • La fine. I bisogni del morente • Il lutto • Cure palliative e hospice • Medici e infermieri di cure palliative • Carta dei Diritti dei morenti / Carta dei Diritti sul dolore inutile • Bibliografia
http://www.effata.it/
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This new Working Party report published by the Royal College of Physicians focuses on the philosophy of palliative care; the issues facing palliative care; oncological experience and its application to other diseases; mental health problems in palliative care and the organisation of palliative care and workforce provision.
The report will be relevant to all doctors and allied healthcare professionals and is essential reading for healthcare planners and commissioners of palliative care services.
There is increasing recognition that the principles of palliative care medicine can be implemented beneficially across most of the NHS and within most specialties. This report therefore reflects the shift in practice from predominantly cancer care to a much broader application. It includes recommendations on disseminating best practice both for those with terminal illness and for those with incurable illness earlier in the disease trajectory. Looking to the future, there is specific consideration of changing demographics, the importance of interdisciplinary care, the dissemination of care pathways, and new funding models. |
Palliative care deals with an area of modern medicine that raises many ethical dilemmas, both in respect of treatment decisions and the formidable obstacles in undertaking research. For although palliative care is generally considered a ‘good thing’, it should be subject to rigorous scrutiny and justification of both process and fundamental precepts.
As end-of-life care may affect us all at some time, this report deserves a wide readership and detailed consideration of its comprehensive recommendations.
http://www.rcplondon.ac.uk/news/news.asp?PR_id=383http://www.rcplondon.ac.uk/pubs/brochure.aspx?e=240 |
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L'HOSPITALISATION À DOMICILE
Une autre manière de soigner
Angélique Sentilhes-Monkam
L'objectif de cet ouvrage est de proposer tout d'abord un état des lieux de la prise en charge de la fin de vie dans trois HAD (hospitalisation à domicile)françaises en adoptant différents points de vue. Il vise également à améliorer la compréhension de ce qui fonde le sentiment de satisfaction ou d'insatisfaction des patients, de leurs proches et des soignants, et d'identifier des outils potentiels de pilotage pour les équipes soignantes. Enfin, l'auteur propose des solutions pour améliorer l'existant et ce, indépendamment des moyens financiers disponibles. |
Rethinking
palliative care
A social role valorisation approach Paul
Sinclair
This book's striking message is that palliative care
does not deliver on its aims to value people who are
dying and make death and dying a natural part of life.
Applying Social Role Valorisation, it argues for the
de-institutionalisation of palliative care and recommends
an alternative framework to current approaches. |
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Primer
of Palliative Care, 4th Edition
|
The American Academy of Hospice and Palliative Medicine
(AAHPM) releases the fourth edition of its Primer of
Palliative Care publication. Newly updated and expanded,
this introductory guide is perfect for those who care
for chronically and terminally ill patients or are interested
in incorporating basic palliative care principles into
their practice.
For more information www.aahpm.org
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Hospice
and Palliative Care in Africa
A review of developments and challenges
Michael Wright and David Clark
| As
the attention of the world focused increasingly on Africa,
the International
Observatory on End of Life Care was commissioned to
conduct a timely review of hospice and palliative care
development across the continent. The Observatory undertook
this review using an approach specially designed for resource
poor settings. Information was collected against an agreed
template to allow comparisons between countries and regions.
As a result, an insight is given into the challenges,
opportunities and successes faced by hospice and palliative
care workers, country by country, throughout the 26 countries
in Africa where a palliative care initiative is underway.
Strategies and models of care are explored, and the development
of palliative care is viewed from various standpoints
including ethnographic, historical, ethnic, demographic
and epidemiological perspectives. This is the first comprehensive
reference focusing exclusively on palliative care and
hospice development in Africa, and makes fascinating reading. |
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What
is Professional Social Work?
Malcolm Payne
This
book is a now classic analysis of social work as a discourse
between three aspects of practice: social order, therapeutic
and transformational perspectives. It enables social
workers to analyse and value the role of social work
in present-day multi-professional social care.
This
completely re-written second edition explores social
work's struggle to meet its claim to achieve social
progress through interpersonal practice. Important features
of this new edition include:
• practical ways of analysing personal professional
identity;
• understanding how social workers embody their
profession in their practice with other professionals;
• detailed analysis of current and historical
documents defining social work and social care analysis
of values, agencies and global social work. |
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This new edition will stimulate social workers, students
and policy-makers in social care to think again about
the valuable role social work plays in society.
Malcolm Payne is, Psycho-social and Spiritual Care,
St Christopher's Hospice, London, Emeritus Professor,
Manchester Metropolitan University and Honorary Professor,
Kingston University/St George's Medical School.
For more information click
here
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Communication
in Cancer Care
F. Stiefel, CHU Vaudois, Lausanne,
Switzerland (Ed.)
This
book covers all the relevant aspects of communication
in cancer care, such as communication in cancer prevention
and genetic counselling, communication at different
stages of disease and communication with the family
and children. In addition, more general topics are discussed,
such as the benefits and evidence of communication skills
training and the challenges of interdisciplinary and
cross cultural communication. Besides useful information
on direct clinical relevance, current theoretical frameworks
and research on communication in oncology are presented.
The chapters
are written by leading figures in the field of psycho
oncology and communication, who work and teach in different
European countries.
Contents: Key elements of communication in cancer care.
Motivating for cancer prevention. Communication in breast/ovarian
cancer genetic counselling. Informing about diagnosis,
relapse and progression of disease and communication
with the terminally ill cancer patient. Maintaining
hope: communication in palliative care. The patient
and his family. Children with cancer. Interdisciplinary
communication. Cultural aspects of communication in
cancer care. Current concepts of communication skills
training (CST) in oncology. CST in oncology: it works!
Comments on the scientific evidence. CST in oncology:
open questions and future tasks.
For more information click
here |
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Caring
for Terminally Ill Loved Ones
Lean
on Me: Cancer Through a Carer's Eyes
A Book by Lorraine Kember –
Inspirational True Story
a
book written by Lorraine Kember, is a powerfully moving
and inspirational TRUE story about her husband's courageous
battle with mesothelioma (asbestos related cancer) and
her emotional journey as she cares for him. This touching
book includes helpful information on topics such as:
Cancer pain management, symptom control, Palliative
Care, Quality of Life, Coping with grief. Diary excerpts
and poems Lorraine penned along the way are interspersed
throughout this book and further depict the depth of
their love for each other, the sense of helplessness
she experienced on his diagnosis and her growing strength
as she comes to realize that there is much she can do
to improve the “quality of his life”. This
book has been highly recommended by the Cancer Council,
as well as numerous other organizations and doctors
for those who have – and particularly those who
care for – loved ones with cancer of all kinds.
To read more about this book or order it online, please
visit her website http://www.cancerthroughacarerseyes.jkwh.com |
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Conquering
your child’s chronic pain
A
Book by
Lonnie Zeltzer and Christina Blackett Schlank
This
book has been written by one of the pioneers and leading thinkers
in the area of chronic pain in children. It is easy to read,
and shows in a precise and scientific way , the clinical and
psychological aspects of children’s chronic pain. It
is written for the parents of children with chronic pain but
is a very usefull tool for any healthcare worker, developping
the different approaches to treatment. I highly recommend
it.
Dr
Chantal Wood
Unité de Traitement de la Douleur
Hôpital Robert Debré
48 Bd Serurier
75019 Paris
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