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EAPC projects or Taskforces
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The development of guidelines and a core curriculum for the palliative care for people with neurological disease – an EAPC
Task Force
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Aims:
- To develop guidelines for the care of people with neurological disease.
- To develop a core curriculum on neurological pallitaive care for both palliative care professionals and neurology health care professionals
Members:
Chair: Dr David Oliver, Wisdom Hospice, Rochester and University of Kent, UK
Dr. Virginio Bonito, Ospedali Riuniti Bergamo, Italy
Ms. Janice Brown, Univerity of Southampton,UK
Prof. Gian Domenico Borasio, Klinikum der Universität München. Germany
Dr. Rachel Burman, King’s College, London, UK
Dr. Auguto Careceni, National Cancer Institute, Milan, Italy
Dr. Stefan Lorenzl, University of Munich, German
Prof. Raymond Voltz, University of Cologne, Germany
Project Milestones:
- May 2009: 11th EAPC Congress – draft guidelines for discussion at a specific session on neurological palliative care.
- October 2009: 19th World Congress of the WFN – draft core curriculum for discussion at a session on neurological palliative care.
- 2011: Guidelines finalised for presentation at the 12th EAPC Congress
Project summary:
The aim of the project is to increase awareness if the palliative care needs of people with neurological disease – primarily, but not exclusively, amyotrophic lateral sclerosis (motor neurone disease), multiple sclerosis, Huntingdon’s disease and Parkinson’s Disease. This will be incresingly important with the ageing population in Europe as increasingly people will have neurological disease, as their main problem or as a co-morbidity.
The project will aim to develop guidelines to improve the care of people with neurological disease, by increasing awareness of problems and issues experienced by this population both within palliative care and neurology. This will help in the collaborative approach to holistic care – involving both neurological and palliative care services.
The developent of a core curriculum for all professionals, in both neurological services and palliative care services, will allow the development of greater awareness and more effective managemet of this patient group, so that the quality of life of patients and families can be improved.
Other Institutions proposed for collaboration:
European Federation of Neurological Societies (EFNS) – there will be collaboration on the development of guidelines. In particular the Scientific Committee.
World Federation of Neurology (WFN)– there will be collaboration on the development of both guidelines and core curriculum.
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