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updated: 6 November 2008
Miscellaneous
(The
EAPC is not responsible for the content of external internet
sites listed)
Palliative Care Network www.palliativecarenetwork.com/Aboutushtml.html
Using widely available internet technology, Palliative Care Network provides a platform for palliative care professionals to teach, interact, and exchange ideas with fellow colleagues in places around the world where the knowledge gap is wider than the technology gap.
New Social Arena for Carers and Care Sector Workers www.carersconnect.com. A new website and forum has been developed for Carers, whose domestic situation can often be isolating and those who work in the Care Sector for whom unsociable hours and stressful situations may well affect their social life. By sharing experiences with others who understand, in order to lighten the load and have some fun, an ingredient often missing when undertaking a caring role.
Get Palliative Care http://www.getpalliativecare.org. Valuable information for patients and families coping with serious, complex illness including a palliative care Provider Directory, a definition and detailed description of what palliative care is, direct links to palliative care-related organizations and more.
Terminal illness website: www.terminalillness.co.uk/home.htm focused on coping with a terminal illness as a sufferer, relative or friend, which I thought may be of interest to your visitors. A particularly relevant/useful page to your site is at: www.terminalillness.co.uk/CareOptionsCategory.htm
Grieving Center, USA. is a media rich destination that offers elements of television, with videos providing a wide range of information, along with interviews and music from real life memorial services. The channel includes advice on planning memorial services and explains bereavement counseling and coping strategies.
http://www.grievingcenter.org
National internet radio show, Patient Power.
PP debuted in February 2005 and is a weekly show hosted by Andrew Schorr, eleven-year leukemia survivor, patient educator and patient advocate. The show features renowned medical experts on topics that include cancer, pain, diabetes, and heart specialists, as well as experts in clinical trials and top pharmacists. The show serves to bring patients together in a radio and Internet community to help navigate an often inhospitable healthcare system.
http://www.patientpower.info
Death
signs and symptoms, USA
http://hospice-cares.com/hands/signs.html
Carer’s support. Great Britain
http://www.kingsfund.org.uk/eHealthSocialCare/html/carers.htm
Istituto
“L. Maestroni", Italy
http://www.istituto.org/en/en_ist_main.htm
CancerNausea.com:
Global Website Launched to Patients Suffering from Chemotherapy
and Radiation induced Nausea and Vomiting, Italy
http://www.CancerNausea.com
Grieflink,
Australia
http://www.grieflink.asn.au/frameset.html
Soins
Palliatifs - sites prancophones, France
http://www.chu-rouen.fr/ssf/palliafr.html
HELP
– helpful links to palliative care, UK
http://www.dundee.ac.uk/meded/help/indexb.htm
Palliative
medicine mailbase mailing list, UK
http://www.mailbase.ac.uk/lists/palliative-medicine/
Palliative
drug information for healthcare professionals, UK
http://www.palliativedrugs.com/
Quality
Standards for local carers support, UK
www.carers.gov.uk
Promoting
excellence in end-of-life care, USA
http://www.promotingexcellence.org/
Office
of Inspector General: Enhanced Controls Needed to Assure Validity
of Medicare Hospice Enrollments, USA
http://www.hhs.gov/progorg/oas/reports/region5/59600023.htm
Seeing
the difference, USA
http://seeingthedifference.berkeley.edu/
American
College of Physicians: Home Care Guide for Advanced
Cancer, USA
http://www.acponline.org/public/h_care/
Facts
on dying, USA
http://www.chcr.brown.edu/dying/factsondying.htm
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