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PAEDIATRIC
PALLIATIVE CARE – selected resources
Conquering
your child’s chronic pain
by Lonnie Zeltzer and Christina Blackett Schlank
This
book has been written by one of the pioneers and leading thinkers
in the area of chronic pain in children. It is easy to read,
and shows in a precise and scientific way , the clinical and
psychological aspects of children’s chronic pain. It
is written for the parents of children with chronic pain but
is a very usefull tool for any healthcare worker, developping
the different approaches to treatment. I highly recommend
it.
Dr
Chantal Wood
Unité de Traitement de la Douleur
Hôpital Robert Debré
48 Bd Serurier
75019 Paris
PAEDIATRIC PALLIATIVE CARE – selected resources
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Basic symptom control in paediatric palliative care 2005
The 2005 edition of Rainbow Children’s Hospice Guidelines:
Basic symptom control in paediatric palliative care (written
by Dr Satbir Singh Jassal) is now available as a free download
on the ACT website: http://www.act.org.uk
The What’s New section gives details of upcoming conferences
and you can also enter details of your service for inclusion
in the International Directory of Children’s Palliative
Care and Hospice Services now under development. Please visit
http://www.act.org.uk
•
The International Children’s Palliative Care Network
(ICPCN) is a global network of children’s hospice
and palliative care services: http://www.icpcn.org
•
PaedPalCare – An international email discussion
group for those working
with children with life-limiting conditions. The group is
hosted by ACT and currently has over 600 members across the
world. To join the group send a blank email to paedpalcare@act.org.uk
•
Guide to the Development of Children’s Palliative Care
Services – 2nd edition, a joint publication
from ACT and the Royal College of Paediatrics and Child Health,
reflects the many recent changes in children’s palliative
care in the UK. The Guide is available to ACT members for
£5 and to non-members for £10. Order via the ACT
website at http://www.act.org.uk
or mailto: info@act.org.uk
•
Materials on paediatric palliative care.
IPPC – the Initiative for Pediatric Palliative Care
– a consortium of organisations that work together to
improve care and quality of life of children and families.
It is an initiative of EDC’s Centre for Applied Ethics
and Professional Practice (CAEP). Website offers some useful
resources including quality improvement tools, videos and
a curriculum which is under development. More resources are
planned – you may have to register to download tools.
Website: http://www.ippcweb.org
•
Cancer Pain Relief and Palliative Care in Children, WHO, 1998
Available in English, French, Spanish and Italian.
To order: Email: bookorders@who.int
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