Objectives
The
objectives of the The
Palliative Care in Central and Eastern Europe and Former Soviet Union
Countries Monthly Email Newsletter are to communicate
the activities, diversity, challenges and progress being made in palliative
care development, to foster networking, communication in Central and
Eastern Europe and Former Soviet Union, and also to inform those throughout
the world about the regional effort. One of the main aims of the Newsletter
is to promote the Eastern-European palliative development and to affirm
their collaboration and participation in Europe.
Members
of the group in 2006
1. Dr. Katalin Hegedus, Hungarian Hospice-Palliative Association, editor-in-chief
2. Ágnes Zana, Hungarian Hospice-Palliative Association, editor
(from September 2005)
3. Csilla Raduch, Semmelweis University, English lector (from January
2006)
4. Dr.Elena Vvedenskaya, Russia, translator
5. Gergely Alpár, AmegA Team, IT technician
Project
summary
1. Identity
The purpose was to create an individual, high standard and creative
identity for the Newsletter with the help of the Interactive Communicating
Software of the AmegA team. The short list of modules of the Hungarian
Hospice-Palliative Association uses: basic module (customized editor,
newsletter sending engine, private archive); partner database with grouping;
subscription, un-subscription; background website with archive; statistics;
printer-friendly version; helpdesk.
We wanted to increase the influence of the EAPC in the region using
the EAPC website as background. The 10th Congress of the European Association
for Palliative Care is to be held in Budapest between 6-9 June 2007
and further developing the Newsletter helps us promote the Congress
in the region too.
2.
Country reports
The 20 issues of the Newsletter released so far introduced the country
report of 14 countries: Ukraine, Romania, Lithuania, Hungary, Mongolia,
Slovenia, Poland, Serbia, Macedonia, Croatia, Bulgaria, Albania, Czech
Republic, Moldova, reflecting the cultural diversity, regional characteristics,
and the efforts made in the field of palliative care even though very
often professionals have had to work in very difficult circumstances.
The country reports show us progress in palliative care policy development,
advocacy for palliative care, activities on educating the public, education/training
opportunities in the region, hospice and palliative care practice, drug
availability etc.
Now
these reports are the most recent views about the Eastern European and
Former Soviet Union situation in palliative care all over the world!
3.
Key people
We have found Eastern-European key-personalities in every country who
help us to publish news in the Newsletter: Dr Elena Vvedenskaya, Russia;
Dr Natasa Milicevic, Serbia; Dr Daniela Mosoiu, Romania; Dr Avyrdas
Seskevicius, Lithuania; Dr Urska Lunder, Slovenia; Dr. Odontuya Davaasuren,
Mongolia; Dr Nikolay Yordanov and Dr Penka Kolchakova, Bulgaria; Dr
Anica Jusic, Croatia; Dr Mirjana Adzic, Macedonia; Dr Albert Leka, Albania;
Martina Spinková, Czeh Republic; Alexander Wolf, Ukraine; Elena
Stenpovscaia, Moldova; Dr Gvamichava Rema, Georgia; Professor Jacek
Luczak and Rev Piotr Krakowiak, Poland etc.
We involved Western-European and US consultants such as David Clark,
Michael Wright, Carl Johan Fürst, Sylvia Sauter, Avril Jackson,
Heidi Blumhuber, Amelia Giordano, Mary Callaway, Liliana de Lima.
4.
Model programs
We regularly published reports about the model-programs of a region
or city such as: Hospice Gdansk in Poland, Arzamas Hospice in Russia,
the Tbilisi model in Georgia, Palliative Care Hospice Society in Moldova,
Chinese Association for Life Care; various educational models in Lithuania,
Bulgaria, the Czech Republic or Latvia; changes brought about by drug
access law in Romania, National Cancer Control Program in Hungary; twinning
programs including Lithuania and Hungary or Russia and Latvia. We published
interviews on the Czech results and on the main intention of Palliative
Care in Cancer - OSI seminar.
5.
Congresses, events, grants
We reported on important international and national congresses (Poland,
Hungary, Russia, Bulgaria etc), on the results of European congresses
and events (Strasbourg, Aachen, Belgrade, Venice); and published the
summaries and declarations of different congresses (Seoul, Belgrade,
Venice). We regularly reported on various events (e.g. World Hospice
and Palliative Care Day) and on grant opportunities for Eastern-Europeans.
With the help of the EAPC we offered inexpensive accommodation at the
Scientific Forum in Venice in 2006 and we also delineated how to gain
free access to older issues of palliative care journals. We also introduced
the new EAPC programs (e.g. European Task Force), the ECEPT.
6.
Debate
We started a debate on why the ratio of Eastern-European experts is
so low at European palliative congresses. The debate went on with a
pronounced activity: besides the remarks of the Eastern-European participants
we received comments from the EAPC Head Office and from the chair of
the organizing committee of the 9th EAPC Congress in Aachen.
With publishing grants and information we would like to increase the
number of Eastern European specialists for the 10th EAPC Congress in
Budapest, in 2007.
7.
Columns
The permanent columns of the Newsletter are: Further links and Standards
available, collecting 56 useful links and 20 standards in Palliative
care.
By using these links the readers can download the "Recommendation
Rec 24 (2003) of the Committee of Ministers to member states on the
organization of palliative care" in 18 languages.
8.
Languages
The Newsletter is published in English and in Russian languages. The
issues are distributed to almost 600 e-mail addresses. The English version
of the Newsletter has an average 600-1200 readers per month, and the
Russian version about 60-120 readers respectively. We are working on
making the Newsletter available in Hungarian as well.
9.
Promotion of the Newsletter
We promoted the Newsletter during the 2th Global Summit of the National
Hospice and Palliative Associations (Seoul, March 2005); 9th Congress
of the EAPC (Aachen, April 2005); Palliative Care in Cancer meeting,
OSI (Budapest, September 2005); Research Forum (Venice, May, 2006);
NGO Conference (Moscow, September 2006) with leaflets, poster and slides.
The
Newsletter became one of the taskforces of the European Association
for Palliative Care, continuing the work of the EAPC East.
The
Hospice Information Centre at St Christopher's Hospice and the Help
the Hospices is setting up a palliative care resource centre for professionals
in developing and transitional countries that may carry out working
with English as a second language. Resource would be made available
for translation into other languages.
3 electronic newsletters are invited to this project:
•
Hospice
& Palliative Care News – monthly published by International
Association for Hospice and Palliative Care (IAHPC).
• Worldwide
Hospice and Palliative Care Online – bi-monthly signposting
resource published by Hospice Information
• CEE
& FSU Palliative Care Monthly Email Newsletter – monthly
published by Hungarian Hospice-Palliative Association.
You
can read our previous issues as well at the following web-sites: www.hospice.hu/newsletter
and www.eapcnet.org/CeeFsuNlt/index.html
Responsible and organization of project
Responsible for project
Dr. Katalin Hegedus
President of the Hungarian Hospice-Palliative Association
e-mail: hegkati@net.sote.hu
Organization
Hungarian Hospice-Palliative Association
Orczy ut 6, 1089 Budapest, Hungary
e-mail: newsletter@hospice.hu
www.hospice.hu
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